latest health care news

02.07.19

Myeloma UK report supports better integration of patient voice

Myeloma UK and the National Institute for Health and Care Excellence (NICE) have released a report supporting better integration of patient preference data in health technology assessments (HTAs).

The report was the culmination of a research project funded by Myeloma UK and conducted by the Science Policy and Research team at NICE.

It sought to further understand the way quantitative patient preference data could be collected and used in a meaningful way by health authorities when assessing the value of new medicines and technologies.

Currently there is no systematic or agreed methodology for capturing patient perspectives, instead being provided by a small number of patients in narrative form in HTA appraisal meetings.

This means that while input is listened to, it does not always accurately capture how treatments are valued by patients as their experiences can be hard to quality against other evidence, such as clinical trial data. This risks creating a lack of understanding and proper consideration of the patient voice in the process.

In their research, Myeloma UK and NICE found there is clear scope for the better use of quantitative patient preference data in health assessments and that it could better reflect the experience of the wider patient population.

READ THE FULL REPORT HERE

Project lead Dr Jayne Galinsky, from Myeloma UK, said: “How patients value a treatment is not always a straightforward choice.

“It can depend on complex trade-offs based on patients’ personal circumstances and their priorities – a 55 year old and an 80 year might make very different treatment choices, despite both having the same condition.

Patients need access to the most effective treatments and it is important that decision makers understand the benefits and risks of new treatments from a wider patient perspective.

“By making recommendations about the right models for incorporating patient preferences into HTA decision making, this study is the next step to ensuring that patients’ voices are properly heard.”

Comments

There are no comments. Why not be the first?

Add your comment

 

national health executive tv

more videos >

featured articles

View all News

last word

The NHS needs more senior women in leadership

The NHS needs more senior women in leadership

The gender pay gap in the NHS remains a hotly debated topic, especially as the final report from the Gender Pay Gap in Medicine Review approaches. Andrea Hester, deputy director of employment relati more > more last word articles >

health service focus

View all News

comment

Peter Kyle MP: It’s time to say thank you this Public Service Day

21/06/2019Peter Kyle MP: It’s time to say thank you this Public Service Day

Taking time to say thank you is one of the hidden pillars of a society. Bei... more >
Nurses named as least-appreciated public sector workers

13/06/2019Nurses named as least-appreciated public sector workers

Nurses have been named as the most under-appreciated public sector professi... more >

interviews

NHS dreams come true for Teesside domestic

17/09/2019NHS dreams come true for Teesside domestic

Over 20 years ago, a Teesside hospital cleaner put down her mop and took st... more >

the scalpel's daily blog

An ageing population means hand care and injury prevention is more important than ever

23/08/2019An ageing population means hand care and injury prevention is more important than ever

Grey Giddins, member of the British Society for Surgery of the Hand, discusses how hand care and injury prevention have become increasingly important given the UK’s agei... more >
read more blog posts from 'the scalpel' >

editor's comment

25/09/2017A hotbed of innovation

This edition of NHE comes hot on the heels of this year’s NHS Expo which, once again, proved to be a huge success at Manchester Central. A number of announcements were made during the event, with the health secretary naming the second wave of NHS digital pioneers, or ‘fast followers’, which follow the initial global digital exemplars who were revealed at the same show 12 months earlier.  Jeremy Hunt also stated that by the end of 2018 – the 70th birthday... read more >