NHS IT, Records and Data

28.01.20

Health data sharing and public trust still uncertain, research finds

Experts from the University of Manchester have published a report on digital trust today (Jan 28) outlining that NHS, government, universities and companies must work harder to protect health data and maintain public trust in health research.

There has been a recent push in public services to use more and more digital services to store data, and despite the NHS having used electronic health records in GP practices for more than 20 years, data is increasingly being stored across all parts of the healthcare industry.

Public trust around health data sharing is fragile and complex, Professors John Ainsworth and Niels Peek held two citizens’ juries to gain a better overview of public perception on reusing NHS health data.

The Juries were asked the extend that patients should control access to records for secondary use and to evaluate eight scenarios of reusing health data for private gain.

After the experiment, public perception seemed more accepting of data sharing but suspicions were still apparent.

Co-author Professor Niels Peek said:

“The NHS number provides a unique identifier for each citizen which can be used to link data from different databases together, providing a rich, comprehensive source of real-world evidence.”

“So, the question is, how can we maximise this resource for the benefit of all while maintaining the public’s trust.”

Professor John Ainsworth said:

“There’s no question we need to maximise the rich, comprehensive resource that correctly used NHS data can provide and how it can be maximised for the benefit of all.

“It can help us improve healthcare services, understand diseases in populations and assess the safety and effectiveness of treatments.

“But health is an intimate area of personal life and few people feel comfortable with the idea that strangers can see their health record.”

The publication recommends three core policy principles for the reuse of healthcare data, these are transparency, communication and maintaining the social licence with the aim of achieving ‘no surprises’ when health data is used for purposes beyond direct care.

Comments

There are no comments. Why not be the first?

Add your comment

 

national health executive tv

more videos >

latest healthcare news

New £8.4m study launched into long-term impacts of Covid-19

07/07/2020New £8.4m study launched into long-term impacts of Covid-19

The National Institute for Health Research (NIHR) and UK Research and Innovation (UKRI) have launched a major new research study into the long-te... more >
NHS Providers publish guide into NHS digital leadership

07/07/2020NHS Providers publish guide into NHS digital leadership

As part of efforts to help trust leaders build on the momentum achieved during the coronavirus pandemic and support NHS board lead their organisa... more >
Office of Health Economics urges supercharged R&D investment

07/07/2020Office of Health Economics urges supercharged R&D investment

A new report by the Office for Health Economics (OHE) has warned that without immediate action from the Government to “supercharge” p... more >

editor's comment

26/06/2020Adapting and Innovating

Matt Roberts, National Health Executive Editorial Lead. NHE May/June 2020 Edition We’ve been through so much as a health sector and a society in recent months with coronavirus and nothing can take away from the loss and difficulties that we’ve faced but it vital we also don’t disregard the amazing efforts we’ve witnessed. Staff have gone above and beyond, whole hospitals and trusts have flexed virtually at w... read more >

last word

Haseeb Ahmad: ‘We all have a role to play in getting innovations quicker’

Haseeb Ahmad: ‘We all have a role to play in getting innovations quicker’

Haseeb Ahmad, president of the Association of the British Pharmaceutical Industry (ABPI), sits down with National Health Executive as part of our Last Word Q&A series. Would you talk us th... more > more last word articles >

the scalpel's daily blog

NHS at 72: Managing mental health services going forward

03/07/2020NHS at 72: Managing mental health services going forward

Sean Duggan, Chief Executive of the Mental Health Network Let’s take this opportunity to reflect on the amazing achievements of our health system over the past few months. But as we recognise the best of the NHS and its response to the Covid-19 crisis we must not forget that for mental health the peak has yet to come. Covid-19 ... more >
read more blog posts from 'the scalpel' >

comment

NHS England dementia director prescribes rugby for mental health and dementia patients

23/09/2019NHS England dementia director prescribes rugby for mental health and dementia patients

Reason to celebrate as NHS says watching rugby can be good for your mental health and wellbeing. As the best rugby players in the world repr... more >
Peter Kyle MP: It’s time to say thank you this Public Service Day

21/06/2019Peter Kyle MP: It’s time to say thank you this Public Service Day

Taking time to say thank you is one of the hidden pillars of a society. Being on the receiving end of some “thanks” can make communit... more >
Nurses named as least-appreciated public sector workers

13/06/2019Nurses named as least-appreciated public sector workers

Nurses have been named as the most under-appreciated public sector professionals as new research reveals how shockingly under-vauled our NHS, edu... more >
Creating the Cardigan integrated care centre

10/06/2019Creating the Cardigan integrated care centre

Peter Skitt, county director and commissioner for Ceredigion Hywel Dda University Health Board, looks ahead to the new integrated care centre bei... more >

interviews

Matt Hancock says GP recruitment is on the rise to support ‘bedrock of the NHS’

24/10/2019Matt Hancock says GP recruitment is on the rise to support ‘bedrock of the NHS’

Today, speaking at the Royal College of General Practitioners (RCGP) annual conference, Matt Hancock highlighted what he believes to be the three... more >
NHS dreams come true for Teesside domestic

17/09/2019NHS dreams come true for Teesside domestic

Over 20 years ago, a Teesside hospital cleaner put down her mop and took steps towards her midwifery dreams. Lisa Payne has been delivering ... more >
How can winter pressures be dealt with? Introduce a National Social Care Service, RCP president suggests

24/10/2018How can winter pressures be dealt with? Introduce a National Social Care Service, RCP president suggests

A dedicated national social care service could be a potential solution to surging demand burdening acute health providers over the winter months,... more >
RCP president on new Liverpool college building: ‘This will be a hub for clinicians in the north’

24/10/2018RCP president on new Liverpool college building: ‘This will be a hub for clinicians in the north’

The president of the Royal College of Physicians (RCP) has told NHE that the college’s new headquarters based in Liverpool will become a hu... more >

health service focus

View all News