09.07.13
Poll shows concern about dying at home and pain relief
A new report commissioned by a leading long-term care and palliative care charity has said there is a “blinkered focus” on dying at home, meaning hospitals and other healthcare organisations have not improved their end-of-life services.
In a poll for Sue Ryder by Demos, more than three-fifths of people wanted to die at home, and 78% prioritised pain relief – though only 27% thought their home was a place they could be pain free in their final days.
Paul Woodward, chief executive at Sue Ryder, said: “We are concerned that Government and decision-makers are using 'dying at home' as a proxy for quality. This is not good enough. Dying at home does not always guarantee a good death.
“We need to start talking about how people want to die, not just where. Without a clear understanding of what people really want when it comes to care at the end of their lives, we can't determine whether or not existing support meets their needs.
“Everyone deserves a pain-free death, in the place of their choosing and to be surrounded by loved ones."
Claudia Wood, deputy director of Demos, added: “For years health professionals and the Government have been striving to make sure people die in their preferred place – often at home.
“But a blinkered focus on dying at home has meant other settings, such as hospitals, haven't improved what they offer people at the end of life. It also leads us to an uncritical view of dying at home, when we know this can be difficult and traumatic. A well supported, high-quality experience should be on offer regardless of where someone dies.”
Commenting on the survey, Janet Davies, executive director of nursing and service delivery for the Royal College of Nursing, said: “This survey raises considerable concern, but sadly it is not surprising. People approaching the end of their lives should be able to access the same standard of care wherever they choose to spend their last days. There is only one chance to get this right. Not only is this crucial to the experience of the individual, but it can be a source of help and comfort to their loved ones in the days to come.
“Too often, people are not able to access expert advice, care and pain relief, and it is particularly distressing that many people who are dying are brought into hospital out of hours and against their wishes. Only by ensuring that there is a fully trained nursing service available in the community around the clock can we ensure that all patients receive the high quality care associated with that in hospices in their own homes. We would urge commissioners to invest in this expertise so that future patients do not face unnecessary distress at the end of their lives.”
Tell us what you think – have your say below or email [email protected]