NHS IT, Records and Data

18.06.20

Stroke Association launches digital guide for people with aphasia

The Stroke Association has sought to help as many as 350,000 stroke survivors suffering from aphasia, a common communication disability, who are at a greater risk of becoming lonelier and more isolated during the coronavirus pandemic.

While many across the UK have turned to technology to keep them connected with their loved ones, the charity is keen to highlight the challenges some stroke survivors with aphasia face getting online. In response, the charity has launched the ‘Getting Online for People with Aphasia’ guide to mark Aphasia Awareness Month.

The newly-launched digital guide will:

  • Equip stroke survivors’ who have aphasia with the skills they need to get online and use tools, such as Skype, WhatsApp, Facebook and Zoom, so they can keep in touch with family and friends
  • Enable stroke survivors to connect with the stroke survivor community

The digital guide was designed following a UK-wide consultation of stroke survivors with aphasia.

It features helpful information and step-by-step guidance on how to get online and search the internet. Using aphasia-friendly text supported by pictures and key words, it can be used with a text reader and covers the use of many devices, including computers, laptops, tablets and smartphones.

Aphasia is a language and communication disorder, most commonly caused by a stroke. Of the 1.2 million stroke survivors in the UK, around a third have aphasia, which can affect a person’s ability to speak, read, write – and sometimes understand speech and use numbers.

The condition is shown to affect a person’s language skills, not their intellect.

 iStock-1054912546

Of the 1.2 million stroke survivors in the UK, around a third have aphasia, which can affect a person’s ability to speak, read, write – and sometimes understand speech and use numbers
 

Juliet Bouverie, Chief Executive of the Stroke Association said: “When stroke strikes part of your brain shuts down and so does part of you. A third of stroke survivors have aphasia, which can rob you of your ability to read, write or speak.

“This pandemic has created an epidemic of loneliness, particularly among stroke survivors with aphasia. Everyone’s world has shrunk due to the pandemic but imagine the agony of being confined to the walls of your own head.

“This guide provides a vital lifeline and gives you the skills and confidence to get online. It’s particularly helpful for keeping in touch with loved ones, guiding you through things like video calling. Aphasia doesn’t go away and that’s why we’ve developed a tool to help overcome the challenges that you might face.

“It opens up a world of opportunities that may not have been previously accessible to stroke survivors with aphasia. If you’re a stroke survivor with aphasia who needs help getting the guide or would like a printed version, please contact our Stroke Helpline (0303 3033 100).

“Stroke is a lonely experience, but we’re here to support you to rebuild your life after stroke. The guide will also help you to access My Stroke Guide an online community of stroke survivors where you can share experiences, ask questions and find solutions.”

READ MORE: How are we improving outcomes for those affected by stroke?

READ MORE: NHS turns to artificial intelligence to speed up stroke care

Kamini Gadhok MBE, Chief Executive of the Royal College of Speech and Language Therapists, added: “We know that a third of stroke survivors have aphasia and problems communicating and understanding how to use those little things that we take for granted, such as online technology to keep in touch with others.

“Even being able to read a phone number can be a huge struggle. These barriers often leave individuals feeling isolated and alone, so this new tool will help them to stay in touch with loved ones, keep connected with friends and find support from the aphasia community.”

The ‘Getting Online for People with Aphasia’ guide is available at: www.stroke.org.uk/aphasiaonline. It is the first element in a suite of digital resources for people affected by aphasia which the Stroke Association are producing.

Comments

There are no comments. Why not be the first?

Add your comment

 

national health executive tv

more videos >

latest healthcare news

PCN Network: Important people access primary care in way which suits them

10/07/2020PCN Network: Important people access primary care in way which suits them

Following the release of the findings from the latest GP Patient Survey, NHS Confederation’s PCN Network have stressed the importance of en... more >
NHS Test and Trace data shows 97.5% of tests returned the next day

10/07/2020NHS Test and Trace data shows 97.5% of tests returned the next day

As NHS Test and Trace have published the statistics for the fifth week of the service operating, demonstrating that 97.5% of in-person coron... more >
NHS SBS framework launched to help safe return of employees

09/07/2020NHS SBS framework launched to help safe return of employees

A new procurement framework has been launched by NHS Shared Business Services (NHS SBS) to help facilitate the safe return of NHS and other publi... more >

editor's comment

26/06/2020Adapting and Innovating

Matt Roberts, National Health Executive Editorial Lead. NHE May/June 2020 Edition We’ve been through so much as a health sector and a society in recent months with coronavirus and nothing can take away from the loss and difficulties that we’ve faced but it vital we also don’t disregard the amazing efforts we’ve witnessed. Staff have gone above and beyond, whole hospitals and trusts have flexed virtually at w... read more >

last word

Haseeb Ahmad: ‘We all have a role to play in getting innovations quicker’

Haseeb Ahmad: ‘We all have a role to play in getting innovations quicker’

Haseeb Ahmad, president of the Association of the British Pharmaceutical Industry (ABPI), sits down with National Health Executive as part of our Last Word Q&A series. Would you talk us th... more > more last word articles >

the scalpel's daily blog

NHS at 72: Managing mental health services going forward

03/07/2020NHS at 72: Managing mental health services going forward

Sean Duggan, Chief Executive of the Mental Health Network Let’s take this opportunity to reflect on the amazing achievements of our health system over the past few months. But as we recognise the best of the NHS and its response to the Covid-19 crisis we must not forget that for mental health the peak has yet to come. Covid-19 ... more >
read more blog posts from 'the scalpel' >

comment

NHS England dementia director prescribes rugby for mental health and dementia patients

23/09/2019NHS England dementia director prescribes rugby for mental health and dementia patients

Reason to celebrate as NHS says watching rugby can be good for your mental health and wellbeing. As the best rugby players in the world repr... more >
Peter Kyle MP: It’s time to say thank you this Public Service Day

21/06/2019Peter Kyle MP: It’s time to say thank you this Public Service Day

Taking time to say thank you is one of the hidden pillars of a society. Being on the receiving end of some “thanks” can make communit... more >
Nurses named as least-appreciated public sector workers

13/06/2019Nurses named as least-appreciated public sector workers

Nurses have been named as the most under-appreciated public sector professionals as new research reveals how shockingly under-vauled our NHS, edu... more >
Creating the Cardigan integrated care centre

10/06/2019Creating the Cardigan integrated care centre

Peter Skitt, county director and commissioner for Ceredigion Hywel Dda University Health Board, looks ahead to the new integrated care centre bei... more >

interviews

Matt Hancock says GP recruitment is on the rise to support ‘bedrock of the NHS’

24/10/2019Matt Hancock says GP recruitment is on the rise to support ‘bedrock of the NHS’

Today, speaking at the Royal College of General Practitioners (RCGP) annual conference, Matt Hancock highlighted what he believes to be the three... more >
NHS dreams come true for Teesside domestic

17/09/2019NHS dreams come true for Teesside domestic

Over 20 years ago, a Teesside hospital cleaner put down her mop and took steps towards her midwifery dreams. Lisa Payne has been delivering ... more >
How can winter pressures be dealt with? Introduce a National Social Care Service, RCP president suggests

24/10/2018How can winter pressures be dealt with? Introduce a National Social Care Service, RCP president suggests

A dedicated national social care service could be a potential solution to surging demand burdening acute health providers over the winter months,... more >
RCP president on new Liverpool college building: ‘This will be a hub for clinicians in the north’

24/10/2018RCP president on new Liverpool college building: ‘This will be a hub for clinicians in the north’

The president of the Royal College of Physicians (RCP) has told NHE that the college’s new headquarters based in Liverpool will become a hu... more >

health service focus

View all News