latest health care news

18.05.16

Consistent minority of patients opting out of having data shared

New research from the Health and Social Care Information Centre (HSCIC) has found a consistent minority of patients opting out of having their data shared for purposes beyond direct care.

The HSCIC data shows that as of this month 2.2% of patients, or 1 in 45, opted out of having their data shared.

Type 1 and type 2 opts-outs, which were offered as part of the care.data programme back in 2014, are presented at GP practice level. Type 1 counts are based on the number of times the opt-out code occurs within GP records, which will include instances where the opt-out is recorded for the same patient more than once, such as where the opt-out is recorded at more than one practice.

But the latest HSCIC data revealed there are 1,461,877 instances of type 1 opt-outs occurring within GP records, preventing these records from being shared outside the practice for purposes other than direct care.

Overall, 95.7% of CCGs have up to 5% of patients opting out of data sharing.

The care.data programme, which aims to take data from GP surgeries and other healthcare services and put it into a central database, has been blighted with issues since its inception and has come under fire from MPs, campaigners and health professionals.

Substantive progress is not expected on the project until after Dame Fiona Caldicott publishes her review on sharing records and patient consent, which is expected later this summer.

Last year, Kingsley Manning, the chief executive of the HSCIC, admitted that patient requests not to share their data had been ignored because failure to share data would affect the quality of patient care.

Have you got a story to tell? Would you like to become an NHE columnist? If so, click here.

Comments

Linda   18/05/2016 at 16:43

I am one of them and will be until and unless I am confident about the security of my records so no change in immediate future.

Add your comment

 

national health executive tv

more videos >

featured articles

View all News

last word

Foreign patient charges are a distraction from the real issues

Foreign patient charges are a distraction from the real issues

Vivek Kotecha, research officer at the Centre for Health and the Public Interest (CHPI), explains why the charging of foreign patients distracts from our home-grown NHS issues.  The Depart more > more last word articles >

health service focus

View all News

comment

A single approach for purchasing HCTEDs

11/04/2017A single approach for purchasing HCTEDs

Andy Leary, finance director of specialised commissioning (National) at NHS... more >
Filling the void and standardising security

07/04/2017Filling the void and standardising security

Jayne King, chair of the National Association for Healthcare Security (NAHS... more >

interviews

Tight timetable for nursing associate  regulation

28/03/2017Tight timetable for nursing associate regulation

Jackie Smith, chief executive at the Nursing and Midwifery Council (NMC), t... more >
681 149x260 NHE Subscribe button

the scalpel's daily blog

Manchester emergency services praised as city unites against attack

24/05/2017Manchester emergency services praised as city unites against attack

Praise has been heaped on Manchester’s emergency services and wider community as the city came together around the worst terrorist attack in its history. On Monday ... more >
read more blog posts from 'the scalpel' >

healthcare events

events calendar

back

May 2017

forward
mon tue wed thu fri sat sun
24 25 26 27 28 29 30
1 2 3 4 5 6 7
8 9 10 11 12 13 14
15 16 17 18 19 20 21
22 23 24 25 26 27 28
29 30 31 1 2 3 4

editor's comment

22/03/2017New additions and unexpected announcements

As NHE went to press, many of us were still recovering from the chancellor’s unexpected health announcements in his last Spring Budget.   While the sector welcomed Philip Hammond’s revelations, centered on capital funding for advanced sustainability and transformation plans (STPs) and A&E triage schemes (page 24), the government failed to address the funding gap still facing the NHS.   Even the £2bn social care windfall, which Treasury has... read more >