latest health care news

18.05.16

Consistent minority of patients opting out of having data shared

New research from the Health and Social Care Information Centre (HSCIC) has found a consistent minority of patients opting out of having their data shared for purposes beyond direct care.

The HSCIC data shows that as of this month 2.2% of patients, or 1 in 45, opted out of having their data shared.

Type 1 and type 2 opts-outs, which were offered as part of the care.data programme back in 2014, are presented at GP practice level. Type 1 counts are based on the number of times the opt-out code occurs within GP records, which will include instances where the opt-out is recorded for the same patient more than once, such as where the opt-out is recorded at more than one practice.

But the latest HSCIC data revealed there are 1,461,877 instances of type 1 opt-outs occurring within GP records, preventing these records from being shared outside the practice for purposes other than direct care.

Overall, 95.7% of CCGs have up to 5% of patients opting out of data sharing.

The care.data programme, which aims to take data from GP surgeries and other healthcare services and put it into a central database, has been blighted with issues since its inception and has come under fire from MPs, campaigners and health professionals.

Substantive progress is not expected on the project until after Dame Fiona Caldicott publishes her review on sharing records and patient consent, which is expected later this summer.

Last year, Kingsley Manning, the chief executive of the HSCIC, admitted that patient requests not to share their data had been ignored because failure to share data would affect the quality of patient care.

Have you got a story to tell? Would you like to become an NHE columnist? If so, click here.

Comments

Linda   18/05/2016 at 16:43

I am one of them and will be until and unless I am confident about the security of my records so no change in immediate future.

Add your comment

 

national health executive tv

more videos >

featured articles

View all News

last word

Hard to be optimistic

Hard to be optimistic

Rachel Power, chief executive of the Patients Association, warns that we must be realistic about the very real effects of continued underfunding across the health service. It’s now beyond more > more last word articles >

health service focus

View all News

comment

Getting more out of our medicines

20/06/2018Getting more out of our medicines

Paul Chrisp, programme director of medicines and technologies at NICE, desc... more >
Under attack

20/06/2018Under attack

One attack against an NHS worker is one too many. But unfortunately, the tr... more >

interviews

Duncan Selbie: A step on the journey to population health

24/01/2018Duncan Selbie: A step on the journey to population health

The NHS plays a part in the country’s wellness – but it’s... more >
681 149x260 NHE Subscribe button

the scalpel's daily blog

The impact of NICE on cardiovascular disease prevention

06/06/2018The impact of NICE on cardiovascular disease prevention

Professor Gillian Leng, deputy chief executive and director Health and Social Care at NICE, looks into what can be done to decrease cardiovascular disease nationally and how t... more >
read more blog posts from 'the scalpel' >

healthcare events

events calendar

back

June 2018

forward
mon tue wed thu fri sat sun
28 29 30 31 1 2 3
4 5 6 7 8 9 10
11 12 13 14 15 16 17
18 19 20 21 22 23 24
25 26 27 28 29 30 1
2 3 4 5 6 7 8

editor's comment

25/09/2017A hotbed of innovation

This edition of NHE comes hot on the heels of this year’s NHS Expo which, once again, proved to be a huge success at Manchester Central. A number of announcements were made during the event, with the health secretary naming the second wave of NHS digital pioneers, or ‘fast followers’, which follow the initial global digital exemplars who were revealed at the same show 12 months earlier.  Jeremy Hunt also stated that by the end of 2018 – the 70th birthday... read more >