latest health care news

18.05.16

Consistent minority of patients opting out of having data shared

New research from the Health and Social Care Information Centre (HSCIC) has found a consistent minority of patients opting out of having their data shared for purposes beyond direct care.

The HSCIC data shows that as of this month 2.2% of patients, or 1 in 45, opted out of having their data shared.

Type 1 and type 2 opts-outs, which were offered as part of the care.data programme back in 2014, are presented at GP practice level. Type 1 counts are based on the number of times the opt-out code occurs within GP records, which will include instances where the opt-out is recorded for the same patient more than once, such as where the opt-out is recorded at more than one practice.

But the latest HSCIC data revealed there are 1,461,877 instances of type 1 opt-outs occurring within GP records, preventing these records from being shared outside the practice for purposes other than direct care.

Overall, 95.7% of CCGs have up to 5% of patients opting out of data sharing.

The care.data programme, which aims to take data from GP surgeries and other healthcare services and put it into a central database, has been blighted with issues since its inception and has come under fire from MPs, campaigners and health professionals.

Substantive progress is not expected on the project until after Dame Fiona Caldicott publishes her review on sharing records and patient consent, which is expected later this summer.

Last year, Kingsley Manning, the chief executive of the HSCIC, admitted that patient requests not to share their data had been ignored because failure to share data would affect the quality of patient care.

Have you got a story to tell? Would you like to become an NHE columnist? If so, click here.

Comments

Linda   18/05/2016 at 16:43

I am one of them and will be until and unless I am confident about the security of my records so no change in immediate future.

Add your comment

 

national health executive tv

more videos >

featured articles

View all News

last word

Haseeb Ahmad: ‘We all have a role to play in getting innovations quicker’

Haseeb Ahmad: ‘We all have a role to play in getting innovations quicker’

Haseeb Ahmad, president of the Association of the British Pharmaceutical Industry (ABPI), sits down with National Health Executive as part of our Last Word Q&A series. Would you talk us throu more > more last word articles >

health service focus

View all News

comment

NHS England dementia director prescribes rugby for mental health and dementia patients

23/09/2019NHS England dementia director prescribes rugby for mental health and dementia patients

Reason to celebrate as NHS says watching rugby can be good for your mental ... more >
Peter Kyle MP: It’s time to say thank you this Public Service Day

21/06/2019Peter Kyle MP: It’s time to say thank you this Public Service Day

Taking time to say thank you is one of the hidden pillars of a society. Bei... more >

interviews

NHS dreams come true for Teesside domestic

17/09/2019NHS dreams come true for Teesside domestic

Over 20 years ago, a Teesside hospital cleaner put down her mop and took st... more >

the scalpel's daily blog

Providers are delivering – and here’s how

09/10/2019Providers are delivering – and here’s how

It has been a challenging few years for healthcare providers, yet they have continued to deliver high quality care despite the conditions. Adam Brimelow, director of comm... more >
read more blog posts from 'the scalpel' >

editor's comment

25/09/2017A hotbed of innovation

This edition of NHE comes hot on the heels of this year’s NHS Expo which, once again, proved to be a huge success at Manchester Central. A number of announcements were made during the event, with the health secretary naming the second wave of NHS digital pioneers, or ‘fast followers’, which follow the initial global digital exemplars who were revealed at the same show 12 months earlier.  Jeremy Hunt also stated that by the end of 2018 – the 70th birthday... read more >