latest health care news

07.07.16

NHS England to close care.data programme following Caldicott Review

The much-criticised care.data programme is to be closed down following the publication of a new report saying the NHS must improve its data handling standards.

The NHS announced that the scheme to store all patient data on a single database would be cancelled following the publication of a long-awaited review from Dame Fiona Caldicott, the National Data Guardian (NDG).

In her report, Dame Fiona said that the NHS has made little process in data safeguarding since 2013 and should follow the same standards as the financial sector. She also said that the case for data sharing “still needs to be made to the public” and there should be an opt-out model for patients’ consent to having their data shared for purposes beyond direct care.

Dame Fiona’s Review was not asked to look at the care.data programme, although she noted the pathfinder areas have been involved in shaping and testing the proposed consent/opt-out model, as have vanguards and health and social care integration pioneers.

The report added that the consent and opt-out models proposed by the Review go further than the approach that was planned for the pathfinder areas, and “should replace the approach that had been developed for those areas”.

In the light of the Review, Dame Fiona added that the government should “consider the future of the care.data programme”.

In response, NHS England said: “In light of Dame Fiona’s recommendations, NHS England has taken the decision to close the care.data programme. However, the government and the health and care system remain absolutely committed to realising the benefits of sharing information, as an essential part of improving outcomes for patients.

“Therefore this work will now be taken forward by the National Information Board, in close collaboration with the primary care community, in order to retain public confidence and to drive better care for patients.”

The care.data programme was halted in 2014, with MPs warning about a lack of public trust in the programme.

In response to the publication of Dame Fiona’s report, alongside a report into NSH data guarding from the CQC, George Freeman, the minister for life sciences, said that he was opening a consultation into Dame Fiona’s recommendations for an opt-out model and 10 new data security standards.

He also published the results of a consultation into the role of the National Data Guardian (NDG), which concluded that organisations should be required to show how they have responded to the NDG’s advice, but the NDG should not have the power to issue sanctions.

Have you got a story to tell? Would you like to become an NHE columnist? If so, click here.

 

 

Comments

There are no comments. Why not be the first?

Add your comment

 

national health executive tv

more videos >

featured articles

View all News

last word

A clear strategy for change is needed for health and social care

A clear strategy for change is needed for health and social care

Nigel Edwards, CEO at the Nuffield Trust, argues that it would be a lost opportunity if the next government does not seek to put both health and social care funding on a more sustainable footing. more > more last word articles >

health service focus

View all News

comment

A hub for healthy communities

23/06/2017A hub for healthy communities

Mark Robinson, New NHS Alliance pharmacy lead, discusses why pharmacy is at... more >
Do something different

23/06/2017Do something different

Jill DeBene, chief executive of Institute of Healthcare Management (IHM), c... more >

interviews

Working collectively to improve cancer outcomes for patients

20/06/2017Working collectively to improve cancer outcomes for patients

Last year, the cancer vanguard established the Pharma Challenge. Rob Duncom... more >
681 149x260 NHE Subscribe button

the scalpel's daily blog

Confed17 open its doors in Liverpool today

14/06/2017Confed17 open its doors in Liverpool today

Confed 17, the major annual NHS Confederation conference, has kicked off today in ACC Liverpool, inviting in more than 1,000 health and care leaders to discuss and review the ... more >
read more blog posts from 'the scalpel' >

healthcare events

events calendar

back

June 2017

forward
mon tue wed thu fri sat sun
29 30 31 1 2 3 4
5 6 7 8 9 10 11
12 13 14 15 16 17 18
19 20 21 22 23 24 25
26 27 28 29 30 1 2
3 4 5 6 7 8 9

editor's comment

13/06/2017Tackling the major challenges facing the NHS

As you will have gathered from the front cover, a theme that runs throughout this edition of NHE is about empowering and involving the workforce in order to deliver innovative change across the system.  Professor Jane Dacre, president of the Royal College of Physicians, highlights on page 16 the importance of sustainability and transformation partnerships/plans (STPs) being implemented and delivered with clinical input at their core.  And the Health Foundation’s... read more >