Data and doctor

NHS Digital launch Data Uses Register to improve transparency

NHS Digital have launched their new Data Uses Register as a way to improve patient data transparency. NHS Digital’s data is already published and available, but one of the major changes that the new tool will do is provide details of which organisations access the data, and their purposes for use.

Some of the organisations using the data include public sector bodies, charities, or commercial companies. In order to access the data, they must have a legal basis, and a legitimate reason to use the data. They must also only be able to use the data for health and care planning, and research purposes.

NHS Digital published a review of the impact of data, released through the Data Access Request Service, to create further transparency around how data is used.

NHS Digital Interim CEO, Simon Bolton, said: “The new Data Uses Register is an important improvement to make our data sharing agreements more transparent and user-friendly.

“We take our responsibility as the guardians of NHS data very seriously and we are committed to being transparent so that people can see exactly who their data has been shared with and why.

“It is important that the public can see openly and clearly how NHS data is shared to build confidence and trust and this new tool will help to ensure that.”

Under this management of data, it will never be sold, and access will never be granted for:

•          Insurance or marketing purposes

•          Promoting or selling products or services

•          Market research

•          Advertising

Although there are protective measures such as this in place, patients can opt out of sharing their data for planning and research purposes. Any requests for data will go through a rigorous review process by NHS Digital and independent groups, against published criteria.

Applicants requesting their data, are also required to prove that they meet security standards, as well as sign contracts that control how the data they access is used. Those contracts include details of the reasons the data may be used, which must be for the benefit of health and social care.

NHS Digital hope to continue improving transparency through the data release register, and aim to improve the service based on feedback from users. The register can be accessed at NHS Digital Data Uses Register - NHS Digital.

NHE Sept/Oct 21

NHE Sept/Oct 21

Improving care for long-term conditions

Join us in our September/October edition of National Health Executive, as we explore a range of topics impacting and improving the care that we can deliver to patients, the facilities within which we deliver them, and the opportunities in the digital space to accent and evolve our care capabilities


View all videos
National Health Executive Presents

National Health Executive Presents

NHE365 Virtual Festival: Digital Healthcare

The integration of new technology, such as using virtual outpatient appointments instead of face-to-face reviews of patients in the hospital. Adapting the ways in which our NHS workers serve people has been critical in continuing to provide high-quality treatment, a positive patient experience and preventing Covid-19 transmission during the pandemic. Our healthcare sector has the potential to transform the way we continue to provide essential services while also improving patient care. But how easy is the integration of these innovations into routine NHS practice?

On the 28th of October, at the NHE365 Virtual Hospitals & Technology Enabled Care online event, we will be discussing patient flow and experience, reducing waiting times, reducing the patient backlog and increasing technology adoption. Will you be attending? 

Finger on the Pulse

Ep 14. Health messaging is a science, Professor Craig Jackson

On Episode 14 of NHE's Finger on the Pulse podcast, we're joined by Professor Craig Jackson, Professor of Occupational Health Psychology
Birmingham City University to discuss the coronavirus pandemic, the health messaging around it and how those in power have missed a trick by overlooking the key role of psychology in informing the public of restrictions, measures and the ever-changing situation

More articles...

View all